More Great Laughter

   Michael and I got to the hospital last night for her second hands on time and changed her trach- me taking it out and Michael putting the new one in with fresh ties after he cleaned around her trachea stoma and neck. We didn't give her a bath because the nurse said she had given her a good one the night before, plus then that gave Michael extra time to hold Emma. She has been doing so great lately and barely having any desats, or even when she has them they are manageable, rather than being the bad "breath-holding spells" that cause her to pass out.

   Is that not the cutest little nose scrunch ever?! Lately she has even been less bothered by getting her diaper changed (at least when we do it). Today while I was wiping her bottom she even smiled!! She's proud of herself for doing so well and knows she will be coming home soon. We don't have a scheduled discharge date yet, but hopefully that will get set this week. Dr. Hardy thinks it is definitely possible for her to be home before Christmas.

   Today my friend Tonia drove up from Sarasota to meet Emma. She texted me two weeks ago asking when a good day would be, and I loved the assertiveness since not many people have asked to meet her. She really loved Tonia though and it helped that she was in a great mood too! She was awake when we got to the hospital at 1:30 and her legs were dancing to her "Toddler Adventure Songs" CD.  We stayed for two hours and watched her play. I did her hands on stuff (blood pressure, changed her diaper, took her temperature, put an outfit on) and then she got my milk. Tonia asked a lot of questions and we talked about a lot of different things. She was really great with Emma, including helping her fall asleep before we left by quietly repeating "Shhhhh" until Emma kept her eyes closed.