On Saturday we changed out Emma's trach for the first time.
That is something that has to be done about once every 10 days. The one
she had before was 3.0mm in diameter with a cuff (plastic piece that
inflates in her trachea so air just goes through the piece rather than
breathing around the trach) and the one we put in today was 3.5mm
without a cuff. She seems to like it a lot, and we also practiced
"bagging her", which is when the nurses have to give her manual puffs
because her oxygen level gets too low and she turns purple and/or passes
out because she gets worked up from being uncomfortable and starts
holding her breath or if the ventilator gets disconnected for too long.
It was all just practice today because Emma was doing so well and
remained alert and content.
We visited her again that night so I could
bring more milk and so we could spend time with her before the
hurricane. The hospital is going on lock down starting at 7am on Sunday,
so we probably won't be able to see her until Tuesday! I've never gone
more than one day at a time without seeing her, so the nurse said she
would try to send us extra pictures. Emma was doing so well when we saw
her tonight. Nothing even made her furrow her eyebrows or look unhappy
at all. She was awake when we got there at 10:30pm and stayed awake most
of the hour we were there with her. She really loves sucking on her
pacifiers and at one point was even holding it in her mouth by herself
like a big girl! She currently weighs 6 pounds, 5 ounces, but a bit of
that could be fluids from the IV she has had flowing for the past two
days.
I've been on a non-dairy diet for Emma
since August 16th by request of her doctor, and that seems to be helping her a lot. She has had less tummy issues and her diaper rash is pretty
minor right now, so I'll definitely be sticking to that. Today she is 3 months old and currently weighs 6 pounds and is 17 inches long. She is starting to
smile more and likes looking at herself in the mirror. Her first tooth
has broken through - I'm serious, we're all surprised! - and it's a sharp tiny thing. She has been doing so well after her surgeries. We really feel like the Fundoplication (to get rid of her acid reflux problem) has helped a lot and she is projected to come home in six weeks!!!!
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