Showing posts with label premature. Show all posts
Showing posts with label premature. Show all posts

Friday, November 3, 2017

NICU Life in Photos

   There is a photo challenge going around on social media about posting seven black and white photos of your every day life, but it can’t be pictures of yourself or people you know. It’s supposed to be a week long challenge, but since it’s impossible for me to go that long without posting a picture of Emma (plus then I would be denying everyone else on Facebook pictures of Emma, and nobody wants that), I took all of my pictures in the same day. And then added a few more from other days that are NICU related, such as views out my window while driving to the hospital.
 The other night I wondered what advise my best friend Mia would give herself to stay positive if she was in our situation. She gave the uplifting words I was looking for, but then this song came on and it was great listening to the lyrics too.
"Be strong in the Lord and Never give up hope,
You're going to do great things, I already know,
God's got His hand on you so, Don't live life in fear,
Forgive and forget, But don't forget why you're here,
Take your time and pray, These are the words I would say.."
   Another mom and dad had their baby outside and I saw that she had a G-tube too, so I asked if I could get a picture of everything together to see how it might be for us. I'm not sure if she would have all of that with her, but maybe. I can't really imagine pushing that around Disney Springs with us (and all the ventilator stuff) but we want to be able to take Emma around places. That baby did not have a trach.
   Emma joined in on the photo challenge too. Here are three pictures of what she sees and gets to “enjoy” every day. 
  How boring- ha!! But they have been giving her “pod time” where she gets to sit in the carpeted area where the nurses and doctors sit at the computers to document how the babies are doing. She seems to like that a lot since she gets to be closer to everyone and gets more attention, especially when she was dressed up as Baby Dorothy! The fourth picture was a photo challenge done by her guardian angel. Anytime Emma is looking up at the ceiling, I always ask her if she sees the angels. :)

And now here are more black and white artsy pictures that do include sweet baby and family faces!!
 Twins!! Emmy and Emma. Can you tell who is who? ;)
 ♡

Monday, June 19, 2017

My Recovery

Tuesday, June 13th /“Recovery” ~
   On Tuesday, I was feeling a little better, but still very tired and getting sick some. A nurse came in around 5am to take out my catheter, so my goal for the day was to go to the bathroom on my own. She said it would be good if I could go by Noon, so that became my goal so I would be allowed to leave my room to go see Emma. My nurse (Rachel) came in before her shift ended at 7am and “challenged me” to use the bathroom by 10am instead! Michael left in the morning to take Sasha out, and I was cranky when he got back. I had felt a few bathroom urges, but when I got in there, I would just sit there for a few minutes, sometimes just to throw up. This happened twice until maybe around 9:30am I was able to go. There was a piece of paper on the wall and a plastic measuring bowl in the toilet for me to write down how much fluid I was going through. I kept pumping every few hours, upset that I was still only getting a few drops, if any.
   Dr. Feld came in to see how we were doing and at that time Michael was helping me walk another loop around the hallway. The pain from walking wasn’t too bad since I was still on a few different medicines (the epidural, two Percocet every four hours and Motrin every six hours), but I had to lay down on my bed again because I started feeling sick. I had ordered oatmeal for breakfast, but since I told them I was on a “full liquid diet” in the morning, it was more like oatmeal flavored soup. Kind of gross, but I still ate it with brown sugar packets. Around Noon a different nurse came in and took out the epidural in one swift motion as she told me that ripping the tape off would hurt the most.
   Around 2pm I felt good enough to go down to visit Emma in the NICU. My day nurse Megan brought us a wheelchair and Michael wheeled me down to the third floor. I had been keeping my room pretty cold (between 65-70) which felt very comfortable to me, so being in the NICU, the temperature felt much hotter. Especially right over Emma’s bed where they had a heat lamp on. It seriously felt like it was at least 90 degrees in that spot. I was able to stand for a few pictures, but then told Michael that we needed to leave because I didn’t feel well. 
   We got outside of the room and saw Dr. Fleishman, (the pediatric cardiologist who did Emma's fetal heart scan in May) saying hello. He started to talk to Michael, but suddenly I said, “I’m going to get sick!” And I did, so Michael quickly wheeled me away. I felt so sad that I could only see Emma for a few minutes. The nurse said that maybe part of the reason I was still getting sick was because nausea is a side effect of Percocet, so we lowered each dose to just one pill.
   For dinner I was able to eat at least half of my food that I ordered from the hospital cafĂ©. We talked to our college friend, Dawson, that night and while he was on speakerphone his mom began saying prayers for Emma and us. I thought that was really nice. I told Michael it was okay if he slept at home that night, but before he left he monitored and helped me while I took a shower. I had read on a few different websites about C-sections that women weren’t allowed to take a shower for a week due to not wanting to get any soap or water in the incision area. However, my nurse wrapped up my IV and told me that letting soap and water run over my incision was the best way to keep it clean, but not to touch or scrub the area. Michael was so sweet and washed my back, then dried off my legs since I couldn’t bend over. I was able to get more sleep that night- about six hours.

Wednesday, June 14th /“The Day I Became a Cow” ~
   That morning when I was pumping, a blonde doctor came in and asked how I was doing. When I said I was wishing I could make more milk, she suggested I take Fenugreek supplements. Michael woke up late at home, which was fine, so I called him asking to pick me up some of those pills. He also printed out three pictures of Emma for me. It was nice looking at them on my phone, but I wanted them out next to my bed too.
  Within 4 minutes of pumping that morning I got a call in my room from a NICU nurse who said one of the doctors (Doctor Orsini) wanted to speak with me. He said that Emma was ready to start drinking milk through her feeding tube, but since he knew I hadn’t been able to really make any yet, he asked if I would give consent for them to provide donor breast milk to her. Of course I said yes and had to verbally state my name, Emma’s name and give consent again. Even if it’s not mine, I knew breast milk was going to be super healthy for her. Luckily around 5pm that evening I was able to pump my first milliliter of colostrum and boy was that a huge accomplishment! A couple hours later I was up to 5ml! During one of the morning milk drop offs, Michael talked to the nurses and was able to get the EASE app set up for Emma. That’s a program where they can send us pictures of her with little messages about how she’s doing. I was so excited about that too!
   At 4pm after eating some lunch, pumping again, and getting myself looking nice, we went down to see Emma. It’s always our favorite part of the day! Michael usually saw her more while I was in the hospital, just because he would go down to the NICU each time I pumped to turn in my bottles. We brought the wheelchair down just in case, but I was glad that I didn’t need to use it. I had been walking in place when I pumped to get blood flowing through my body better and kept the room temperature between 70-73 so the NICU wouldn’t seem as hot. This time Emma didn’t have the heat lamp on. We were able to stay with her for about 30 minutes. The nurse (Brittany) told us that they had Emma on about 30% oxygen the night before, but they had been able to turn it down to 26%, which was only five percent more than what everyone normally breathes. We made a couple videos, which I love watching over and over (and over!!), and I made sure to stick my pinky in her tiny hand because I wanted to feel those love squeezes.
   When Michael drove home to take Sasha out before dinner, Nellie the lactation consultant came in to see how I was doing and told me how great of a husband Michael is, mentioning that not many husbands are as helpful as he is. I said thank you prayers for him and thanked him again when he got back to the room.
   We visited Emma again around 11pm after I pumped and before Michael went home to sleep. The night nurse was really nice and asked us what the baby’s name was. We both said “Emma” in our sweet voices. “Oh, Emma. That is such a pretty name.” We got to see Emma get her diaper changed (those are some tiny diapers!) and I almost started crying when she got wiped because she made a crying face, but she never makes any noise. Michael said it was probably just because the wipe was cold, but I hate her having to be so strong and how she makes those sad faces for a second or two that crush my heart.
 ^^ Such a special moment because they keep her sedated most of the time to help her breathing, and also so her wiggly strong arms don't try to push her tubes out, so when she was able to open her eyes just a tiny bit to look at Michael.. Well, let's just say he melted into the floor. ♡♡♡
   A month or two ago I was texting Lindsey about baby monitors and how I wouldn’t want to rush in every time the baby makes an uncomfortable noise because most of the time they just turn over or are able to cry themselves back to sleep (especially if they have recently been fed and changed), but now seeing Emma for real and me dying every time she looks unhappy just for a second, rushing to her side is all I want to do!

Saturday, June 17, 2017

The Most Beautiful Girl in the World

  It is with great honor that Michael and I are able to announce the birth of our daughter!! Emma McKenzie Gore was born on Monday, June 12th at 12:51pm weighing a thankful 3 pounds, 3 ounces (1450 grams) and measuring 15 inches long. She has what may be an undiagnosed hip dysplasia, but that is something the pediatric geneticist and orthopedist will work on in the later weeks with possible casting and physical therapy. We think she has Michael's nose, my chubby cheeks, and our dog's black hair. Ha! I am also surprised by how tan her skin tone is.
   Michael and I are back home now as I got discharged from the hospital yesterday afternoon, but I definitely cried when I got home because I wanted Emma to be there with us. But the most important thing is that she is alive and well, and we didn't come home "empty handed" like we were told we might last month. Her being hooked up to tubes and working on her breathing is a very good thing and we just have to be patient until we can hold her in our arms and keep her forever!

Monday, June 5, 2017

Maternity Photos ~ 36 Weeks

  On Tuesday of last week I was called and notified of Emma's scheduled birthday/ my C-section appointment. I sent the date to all my friends and family so they could mark the joyous occasion on their calendars forever. It shouldn't be too hard to remember since it's the day after my birthday! ;) My friend Miriam texted came over yesterday at 1:30 with her camera bag (she has a Canon T3i) and goodies for baby Emma.
   We took pictures on a dock in one of the neighborhoods behind us, then changed outfits for pictures on the trail near our house, and a few in Emma's room with Sasha. The pictures turned out so great and I'm really glad we have those now! She took a total of about 240 and I've narrowed down to my 29 favorites:
   I feel like the beginning of photo shoots are always a bit more stiff and awkward feeling, so on our short drive to the trail I pulled up my Pinterest account with maternity poses and such to give us different ideas of how to stand. But it also could have been because the second outfit was more comfortable than wearing the dress. Miriam also said she was going to shoot faster, causing us to move around more and then we started getting silly, which helped loosen us up too.
 ^^ Probably my favorite picture from the day. It is currently my phone wallpaper! :)
 ^^ I told Michael, "If we could have one picture to define our relationship, this would be it."
  Michael finished converting Emma's closet into the changing area last night during a few more errands, and I was very thankful that he kept a section for me to hang up some of her clothes. We might have to buy some preemie pieces (and diapers!) in a couple weeks before we bring her home, especially if she only weighs four pounds then.
   The past few days between getting everything organized for the closet and me cutting tags off of all Emma's outfits, hanging up the smaller pieces, and putting the bigger sizes in drawers, Sasha seems to sense that more is changing than usual. She kept laying down in our laps wanting scratches. We are very interested to see how she reacts when we bring Emma home, but we both think she will be very jumpy and sniffy, but sweet and not bark at her new "sister".